Monday, November 22, 2010

Because

This commercial stars one of Ella's doctors from the NICU. Every time I see it air on TV, it brings a smile to my face. University of Minnesota Amplatz Children's Hospital - Because Commercial shows the compassion of their doctors in the NICU. We remember firsthand the dedication of Dr. George and his colleagues. The doctors in the NICU cared for Ella but also cared about us, her parents. Not because they had to, but just because! Our memories with our daughter also include memories with the doctors and nurses at Amplatz because they became part of our NICU family.

So during this holiday season, I am so grateful for the team of doctors and nurses that take care of many little babies in the NICU. Not only at Amplatz, but also at Children's Hospital in Minneapolis and Children's Hospital in St. Paul. Thank you for your service to families and especially to our precious little miracles each and every day.  Not because you have to, but just because you do!

Wednesday, November 17, 2010

Odds and Ends

  • November is National Prematurity Awareness Month.  Prematurity is the leading cause of death among newborn babies. Our own little girl was born 16 weeks premature and ultimately ended up passing away after 83 days of fighting.  November 17th, 2010 is National Prematurity Awareness Day and we are wearing purple to support all babies who are born too soon.  The March of Dimes has done wonderful research to help bring awareness to this very special cause.
  • Ryan and I are having a NICU tour at Children's Hospital-Minneapolis.  We are excited to meet another new contact in the NICU and spreading our help to some new families.  We know we will enjoy visiting this unit since it is newly remodeled.  Can't wait to share some of our fun ideas to help babies and families.  We are also putting together care packages for Children's-St. Paul for newly admitted families and babies.  Can't wait to share with them in December!
  • As the holidays are approaching we have many people looking for ways to give back to NICUs. Ella's Halo set up a Target Wish List here.  You can click on the link and see what items you can purchase for us to donate to area hospitals.  Also we are always collecting blankets and books so email info@ellashalo.com for more information.
  • Also this week, the Star Tribune is doing the Full Page Project. They will donate a full page of advertising space to be used by the local non-profit organization selected by readers in an online poll. Please go and vote for Ella's Halo.  You may vote once per hour until 5 pm, Sunday, Nov. 21.  A full page ad in the Star Tribune would be so beneficial for us in helping us spread our mission to others and get the word out about bringing comfort to NICUs.

Monday, November 15, 2010

Give to the Max

Give to the Max Day is November 16th!

Please support one of your favorite Minnesota charities, Ella's Halo,  by donating on GiveMN. Every donation you make gives Ella's Halo the chance to win even more money.  Your gift makes an even bigger difference on November 16. So, please plan to give tomorrow and tell your friends and family to give. Give to the Max Day is about all of us coming together to support nonprofits who work tirelessly to improve the quality of life in Minnesota.


Visit the Ella's Halo page on GiveMN.org: http://givemn.razoo.com/story/Ellas-Halo.  GiveMN.org is an easy way to discover, support and engage with charities online.

Thursday, November 11, 2010

This I Believe

I believe that Ella's little life touched my soul so deeply that I have forever been changed.  I sometimes forget that her life may have also touched our family and friends too. I forget that even though others may not know her, they are being changed by the help we are providing in her memory. 

Sometimes I get worried that others will soon forget Ella and my heart aches. But almost like someone from above knew I needed a little reminder, we receive a sweet email.  Ryan's cousin's daughter Katie was asked to write an essay for a class assignment.  She is 13 years old and decided to write a beautiful paper on Ella.  

This I Believe - By Katie

I believe that when something goes terribly wrong you should make some good out of it. For Ryan and Taryn Krumwiede they did exactly that. Two years ago in late March, Ella Jo Krumwiede was born. About two and half months later she got sick. The hospital treated her hoping it would help but, unfortunately, she didn’t respond and died.

Ella Jo Krumwiede’s story from birth to death. On March 25th my dad’s whole side of the family was full of joy because we now had a new addition to our big family. But we all were concerned because she was sixteen weeks premature and only weighed one pound one ounce. We all knew that there was going to be problems that we would have to go through. There would be times we would just cry from being happy or sad, and that things would happen that we never expected. Because of her being premature we were all worried about what could happen. We wondered if she would have trouble breathing because her lungs might not have been fully developed. We worried she might be deaf or blind or even have cerebral palsy. We hoped and hoped that she didn’t and that she would survive all of this. But 83 days after she was born she was gone. She had gotten a disease and shortly after that she died.

Most people would try and forget about the death or hope that, in time, the pain would pass. Instead of forgetting or waiting, Ryan and Taryn started an organization called Ella’s Halo. The organization is for babies and their families. They try to give them a more homey place in the hospital while their baby is in there. They make blankets for the hospital beds and also for the babies. They also give books, music and movies for the parents and sibling or siblings to have something to do. Just last year they had gotten over 7,000 dollars in donations.

How does Taryn feel about the death of her daughter and the organization that her and her husband started? Taryn feels that Ella’s fight was over and that it was her time to go. She now knows that Ella is now in a better place. But she knew that she couldn’t just let her go, so she found a way to hold onto Ella. She and her husband started Ella’s Halo. Not just to hold on to Ella, but to also help other babies that were like Ella Jo.

How do I feel about Ella Jo’s death? Because she was my cousin I’ve always felt really sad that she had died. Every time I see a picture or video that she’s in I cry. I wish that I would `have seen her in person not just in pictures. But even though I never really saw or met my baby cousin, I know that she is important to me and I will never forget her.

Since Ella Jo’s death. Ryan and Taryn are doing positive things. They found a way to overcome Ella’s death by helping out other babies. Even though they might think back to that situation and just cry, they know that good things have come out of it and that they’re helping out many babies and families all around Minnesota.

Thank you Katie for remembering Ella and for sharing her story so beautifully.  Your essay shows the love of family no matter what and this I believe is what Ella's story is all about!

Sunday, November 7, 2010

LaunchHer

Ella's Halo was recently featured on LaunchHer's website.  This wonderful website provides the boost that women-owned brands need by featuring new and fresh companies as well as being a support of PR and development to women-owned companies.  However, LaunchHer did a special series on their blog.  Ella's Halo was featured at what LaunchHer was loving.  How fun is that! 

Check out their blog here to read our story and check out their website at http://www.launchher.com/.  See how so many other amazing women are creating businesses they love.

Tuesday, November 2, 2010

October 30th

Saturday brought beautiful blue skies...


a group of eager 5K racers...


many wonderful families to walk...


and two loving parents of Ella.


Thank you to everyone who came out and joined us for our Strides for NICUs.  It was a beautiful day, we had 100 particpants for the run/walk and raised over $3,000. October 30th was simply a beautiful day.

Thank you to our sponsors:
Judd and Soleil Palubicki
Nadine's
Sewer Service Inc.
Wilson Family

Sunday, October 31, 2010

Happy Halloween